﻿<?xml version="1.0" encoding="utf-8"?><rss version="2.0"><channel><title>polyhobbymommy's Autisable</title><link>http://polyhobbymommy.autisable.com/</link><description>Latest Autisable weblog from polyhobbymommy</description><language>en-us</language><ttl>60</ttl><image><title>The Weblog Community</title><url>http://s.autisable.com/partners/autisable/images/logo-207x44.gif</url><link>http://polyhobbymommy.autisable.com/</link></image><item><title>Kiss my Aspergers!</title><link>http://polyhobbymommy.autisable.com/771759376/kiss-my-aspergers/</link><guid>http://polyhobbymommy.autisable.com/771759376/kiss-my-aspergers/</guid><pubDate>Tue, 19 Feb 2013 18:14:07 GMT</pubDate><description>&lt;p&gt;&lt;em&gt;This is for anyone who has a loved one with Autism, and especially for all the ones whom we love with Autism. &amp;nbsp;My children overwhelm even myself with their&amp;nbsp;capacity&amp;nbsp;for love and&amp;nbsp;expectance&amp;nbsp;in others. &amp;nbsp;If I have achieved nothing else in my life, I would be a happy woman. &amp;nbsp;This is the one aspect of my life, that &amp;nbsp;I am most proud of. My only hope is that this will always stay with them, despite life's&amp;nbsp;turbulence.&amp;nbsp;&lt;/em&gt;&lt;/p&gt; &lt;p&gt;I generally don&amp;rsquo;t tell people that they have Aspergers &amp;nbsp;at first, unless they ask. Mainly, because I don&amp;rsquo;t the anyone to treat them different or think they are incapable of anything just because they have Aspergers. &amp;nbsp; Reality is, someone always makes a comment about their behavior or lack of eye contact. And I then tell them. &amp;nbsp;The boys just started Kung Fu. &amp;nbsp;On the second day of Kung Fu, Gabe proudly&amp;nbsp;announces&amp;nbsp;he &amp;nbsp;and his brother, Zeke, has Aspergers. I've never hid it from the boys, we are involved with the Autism Community here in Va Beach, and most of their closest friends are on the spectrum too. &amp;nbsp; They know they have Aspergers Syndrome, but I&amp;rsquo;m not totally sure what it means to them.&lt;/p&gt; &lt;p&gt;Today were driving in the van to yet another doctors apt. &amp;nbsp;I figured this what a good time to have this conversation with them. &amp;nbsp;What they had to say, made my heart soar and brought tears to my eyes. It is the moments, that I know I am doing things right despite all that we've&amp;nbsp;endured.&amp;nbsp;&lt;/p&gt; &lt;p&gt;Me: &amp;ldquo;So Gabe, you told the teacher you have Aspergers. What does Aspergers mean to you?&amp;rdquo;&lt;/p&gt; &lt;p&gt;Gabe:&amp;rdquo; I donno&amp;rdquo;&lt;/p&gt; &lt;p&gt;Me:&amp;rdquo;Well&amp;hellip; you know a thing or two about it. &amp;nbsp;How do you feel about all your friends who have Aspergers&amp;rdquo;&lt;/p&gt; &lt;p&gt;Gabe: &amp;ldquo;They are always the nicest and the smartest kids I know. &amp;nbsp;They are builders and inventors&amp;rdquo;&lt;/p&gt; &lt;p&gt;Me: &amp;ldquo;Is it a&amp;nbsp;compliment&amp;nbsp;or a put down when you think of the word Aspergers&amp;rdquo;&lt;/p&gt; &lt;p&gt;Gabe: &amp;ldquo;of course it&amp;rsquo;s a&amp;nbsp;compliment&amp;hellip; who wouldn&amp;rsquo;t want friends with Aspergers&amp;rdquo;&lt;/p&gt; &lt;p&gt;Me: &amp;ldquo;What do you think about your friends who are non-verbal&amp;rdquo;&lt;/p&gt; &lt;p&gt;Gabe: &amp;ldquo;Mom&amp;hellip; don&amp;rsquo;t you know they are the most nice of all&amp;rdquo;&lt;/p&gt; &lt;p&gt;Me:&amp;rdquo;yeh&amp;hellip; they are aren&amp;rsquo;t they&amp;rdquo;&lt;/p&gt; &lt;p&gt;Me: &amp;ldquo;So Zeke, what are your thoughts?&amp;rdquo;&lt;/p&gt; &lt;p&gt;Zeke: &amp;ldquo;I agree&amp;hellip; they are too smart and too nice&amp;rdquo;&lt;/p&gt; &lt;p&gt;Me: &amp;ldquo;And the kids who are non-verbal&amp;rdquo;&lt;/p&gt; &lt;p&gt;Zeke: &amp;ldquo;They are&amp;nbsp;thoughtful&amp;hellip; nothing is wrong with them, they are just thinking&amp;rdquo;&lt;/p&gt; &lt;p&gt;Me &amp;ldquo;You were non-verbal for awhile&amp;hellip; do you remember any part of it.&amp;rdquo;&lt;/p&gt; &lt;p&gt;Zeke: &amp;ldquo;I know&amp;hellip; but I was thinking.. that&amp;rsquo;s how I know they are thinking&amp;rdquo;&lt;/p&gt; &lt;p&gt;Me: &amp;ldquo;What were you thinking about?&amp;rdquo;&lt;/p&gt; &lt;p&gt;Zeke: &amp;ldquo;I don&amp;rsquo;t remember&amp;hellip; but I know it was important&amp;rdquo;&lt;/p&gt; &lt;div&gt;&amp;nbsp;&lt;/div&gt;</description><comments>http://polyhobbymommy.autisable.com/771759376/kiss-my-aspergers/#firstcomment</comments></item><item><title>Gabe's Sleep Study</title><link>http://polyhobbymommy.autisable.com/769939070/gabes-sleep-study/</link><guid>http://polyhobbymommy.autisable.com/769939070/gabes-sleep-study/</guid><pubDate>Sun, 25 Nov 2012 16:04:55 GMT</pubDate><description>&lt;p&gt;Keep in mind I was epelptic as a child. &amp;nbsp;So this is what has been running in the back of my head since he was an infant.&amp;nbsp;And as you read you will understand why &amp;nbsp;I am so upset,&amp;nbsp;angered&amp;nbsp; and frankly fucking bitter that it took so long for someone to take me serious.&lt;/p&gt; &lt;p&gt;One of the issues we have been struggling with &amp;nbsp;Gabe his night time sleeping habbits. &amp;nbsp;Gabe has always needed 12 to 14hrs of sleep a night. If you wake him up, you have pure hell on wheels. If he wakes up on his own, it&amp;rsquo;s rough but about 3hrs after waking up life returns to normal In the Nusbaum home. &amp;nbsp; And when I mean rough, I mean biting, kicking, punching, head butting and it has been this way for him since he was about 6mos old. Gabe has always kicked at night. &amp;nbsp;Infact most nights, he kicks, about 50% &amp;nbsp;of the time Gabes ends up on the floor under his bed. When he was an infant I can&amp;rsquo;t tell you how many black eyes or bloodied-lips he gave me during the night. &amp;nbsp;Nevermind the wetting the bed.&lt;/p&gt; &lt;p&gt;When he was 4 he was put on resperdol and a lot of the kicking stopped. It reduced by about half. &amp;nbsp;Well over the years we&amp;rsquo;ve reduced his medication and the kicking started back up again. &amp;nbsp; Back in July we had a huge scare with Gabe. &amp;nbsp;Gabe speaks super fast in general and when he&amp;rsquo;s excited he stutters. It&amp;rsquo;s not that often, but he does. &amp;nbsp;One day we were driving and &amp;nbsp;Gabe was talking fast. I asked him to slow down and then the was stutters. &amp;nbsp;Again, I said. &amp;ldquo;Baby mommy can&amp;rsquo;t understand you.&amp;rdquo; Then he was talking but he started slurring like he was drunk, I looked at him and he was kinda drooling and talking but it was complete nonsense. I called his pdeitrician they ordered a CT and that was negative. This lasted off and on for three days. &amp;nbsp;When it was all said and done Gabe said his head really really hurt him. &amp;nbsp;So since Gabe has always complained about his head they gave him the diagnoses of complex migraines. &amp;nbsp; &amp;nbsp;So up until recently anytime Gabe started slurring he usually always said his head was hurting a few minutes later, so we were giving him ibprofen.&amp;nbsp;I still was pretty upset.&lt;/p&gt; &lt;p&gt;In Aug, I was teling his physiatrist&amp;nbsp; and his pediatrician&amp;nbsp;about this and Gabe&amp;rsquo;s sleep patterns and how much of a concern it was to me. &amp;nbsp;I had several&amp;nbsp;theories&amp;nbsp; &amp;nbsp; Because Gabe is thrashing most nights he&amp;rsquo;s not getting good sleep. &amp;nbsp;&lt;strong&gt;A.&lt;/strong&gt;&amp;nbsp;Is he getting REM sleep? If not, is it taking longer for his&amp;nbsp;medicine&amp;nbsp;to take effect? &amp;nbsp;&amp;nbsp;&lt;strong&gt;B&lt;/strong&gt;. What if he doesn&amp;rsquo;t need medication if it&amp;rsquo;s a sleep disorder? &amp;nbsp;That&amp;rsquo;s not to say he doesn&amp;rsquo;t have problems. But we are tackling the wrong problem.&amp;nbsp;&lt;strong&gt;C.&lt;/strong&gt;&amp;nbsp;Worse case&amp;nbsp;scenario&amp;nbsp; Is Gabe having seizures?&lt;/p&gt; &lt;p&gt;So off to the Sleep Study Specialist we go. &amp;nbsp; He thought that Gabe may have had restless leg syndrome that could have been caused by an iron diffency. We got through the sleep study test and I didn&amp;rsquo;t sleep because I wasnervous watching Gabe the whole night. And of course Gabe &amp;nbsp;sleeps like a rock and &amp;nbsp;does move a muscle all night. I&amp;rsquo;m thinking &amp;nbsp;maybe I&amp;rsquo;m over worrying.&lt;/p&gt; &lt;p&gt;A few days later, I get the call from the Sleep Study Specialist. He appglogized for calling so late in the evening. But he says he had bad news. &amp;nbsp; He was expecting to see restless legg syndrome with Gabe. Turns our it looks like he was having siezures. &amp;nbsp;He said there was irrular activity and he now wants more testing &amp;nbsp;done and he wants him to see a neurologist. The doctor said it&amp;rsquo;s pretty rare to see activity at night, so it concerned him quite a bit. &amp;nbsp;Here I was thinking we were safe.&lt;/p&gt; &lt;p&gt;I wasn&amp;rsquo;t shocked by the news. Mostly I was &amp;nbsp;angry. Not at the doctor who called. &amp;nbsp; At all those doctors in the past 9yrs who told me it was nothing, or babies don&amp;rsquo;t kick in their sleep, etc etc etc. &amp;nbsp;I was angry letting them convince me otherwise. For all those times I yelled at Gabe for to stop kicking the walls when he could have been having a seizure. And I&amp;rsquo;m angry for all those times I sent him back to bed when he said his head hurt. &amp;nbsp; Everything we have gone through with Gabe, I&amp;rsquo;ve always been able to keep myself calm and collected because I could say. Well at least he doesn&amp;rsquo;t need surgery, or he&amp;nbsp;doesn&amp;rsquo;t&amp;nbsp;have seizures, etc. &amp;nbsp;He&amp;rsquo;s sensitive and we can deal. &amp;nbsp;And I know that this will be taken care of. But I am kicking myself in the ass for not fighting harder.&lt;/p&gt; &lt;p&gt;How does Gabe feel? He&amp;rsquo;s my happy lil monkey and that&amp;rsquo;s exactly how he should be. &amp;nbsp;Am I as upset as I was last week. No. I know Gabe is in good hands.&lt;/p&gt; &lt;p&gt;My best friends response was. &amp;ldquo;Put your big girl panties on&amp;rdquo;&lt;/p&gt; &lt;p&gt;My sisters response was&amp;rdquo;Is anyone dead? Is Gabe going to die? No? Then your good&amp;rdquo;&lt;/p&gt; &lt;p&gt;And it was exactly what I needed. I&amp;rsquo;ve been through worse. I&amp;rsquo;ve seen worse. I got this. &amp;nbsp;Sometimes you need a kick in the ass to remind you that everything will be alright in the world.&lt;/p&gt; &lt;div id="gallery-1" style="text-align: center;"&gt;&lt;dl&gt;&lt;dt&gt;&lt;a title="20121105_204129" href="http://polyhobbymommy.com/files/2012/11/20121105_2041291.jpg" rel="nofollow"&gt;&lt;img title="20121105_204129" src="http://polyhobbymommy.com/files/2012/11/20121105_2041291-150x150.jpg" alt="20121105_204129" width="150" height="150" /&gt;&lt;/a&gt;&lt;/dt&gt;&lt;/dl&gt;&lt;dl&gt;&lt;dt&gt;&lt;a title="20121105_204136" href="http://polyhobbymommy.com/files/2012/11/20121105_2041361.jpg" rel="nofollow"&gt;&lt;img style="display: block; margin-left: auto; margin-right: auto;" title="20121105_204136" src="http://polyhobbymommy.com/files/2012/11/20121105_2041361-150x150.jpg" alt="20121105_204136" width="150" height="150" /&gt;&lt;/a&gt;&lt;/dt&gt;&lt;/dl&gt; &lt;div&gt;&amp;nbsp;&lt;/div&gt; &lt;/div&gt;</description><comments>http://polyhobbymommy.autisable.com/769939070/gabes-sleep-study/#firstcomment</comments></item><item><title>Giving Thanks</title><link>http://polyhobbymommy.autisable.com/769887481/giving-thanks/</link><guid>http://polyhobbymommy.autisable.com/769887481/giving-thanks/</guid><pubDate>Fri, 23 Nov 2012 16:04:58 GMT</pubDate><description>&lt;p&gt;I don't even know where to begin. &amp;nbsp;I have come to a conclusion that I was just not supposed to survive and I am far too&amp;nbsp;stubborn&amp;nbsp;to die. &amp;nbsp; With each new thing I survive I am in awe in fragility of my life as well as the&amp;nbsp;strength&amp;nbsp;I have gain from that fragile state. &amp;nbsp;I remember as as child I thought I would never make it past 10, and then I thought I'd be lucky if I saw 20. &amp;nbsp;Honest to God, I never in dreamed I would see my 30s. &amp;nbsp;I've impressed myself. I've&amp;nbsp;survived&amp;nbsp;open heart surgery, 7 pacemakers, factor 5, 3&amp;nbsp;pulmonary&amp;nbsp;embolisms, CHF, hoshimotos, not making it through birthing my son,getting hit by a lighting while driving, &amp;nbsp;tornados almost blowing me of a bridge and i am sure i have more crazy stories, but those are the ones that come to mine at the moment. &amp;nbsp;And think to myself.... Holy fuck. I'm still alive. &amp;nbsp; &amp;nbsp;It doesn't make me sad, in fact it makes me embrace this &amp;nbsp;crazy life of mine, I have such&amp;nbsp;desire to live. I want to dance more, laugh louder, &amp;nbsp;fighter harder, love more.&lt;/p&gt; &lt;p&gt;Then I have lost a lot. I've lost numerous family friends of the years. &amp;nbsp;To the friends who passed.&amp;nbsp;Thank you&amp;nbsp;for gracing me with your presence. You are missed every day. It was a honor knowing everyone you. But nothing has been so hard as the loss of my brother and my father. &amp;nbsp;That void is endless. &amp;nbsp;I am so thankful that I had them in my life. Peter was a breath of fresh air. The one of thing I remember most about my brother was his infectious smile. So if anything. &amp;nbsp;I thank you &amp;nbsp;to you, Peter for teaching me to have the courage to smile in spite of some of my darkest hours and the courage to be myself. &amp;nbsp;I'm thankful to have John Wayne for a father. Well I say that jokingly. But Sarge was cool, smooth, a straight shooter, but ever so intelligent. I think dad knew things were going to be tough for me. &amp;nbsp;While I never got what he was saying when I was a kid. I&amp;nbsp;appreciated&amp;nbsp;his bluntness. I find myself looking back on his advice and thinking. "Well I'll be damned." I needed that kick in the ass and I needed not only his strength but how to have personal strength. &amp;nbsp;While my father wasn't the most affectionate&amp;nbsp;man, I knew by the look in his eye how proud he was of us. &amp;nbsp;My mother... Is the&amp;nbsp;definition&amp;nbsp;of &amp;nbsp;unconditional&amp;nbsp;love. While I know we butt heads. There isn't a doubt in my mind that my mother loved us all.&lt;/p&gt; &lt;p&gt;I'm Thankful for my brothers, sisters, neices, and newphews. &amp;nbsp;I can't even imagine a world with out them. I mean how does anyone exist without a "Masiak" in their life? When I was younger I had a hard time feeling close with my siblings. It's &amp;nbsp;not that I didn't love them or they didn't love me. I think the years being in and out of the hospital, loosing Peter, and &amp;nbsp;most of them moving out by the time I 10 . It was confusing on my little head. In my adult years there isn't a shodow of doubt in my mind of the amount of love we have for one another. &amp;nbsp;And that no matter what we go through as a family it doesn't shake us, it only makes our clan stronger and prouder then before. I am so very thankful we are not an&amp;nbsp;obnoxiously&amp;nbsp;stuffy family. That anyone in welcome in our homes that we know no strangers. Mi Casa Su Casa seems to be the family motto.&lt;/p&gt; &lt;p&gt;I am Thankful for my husband. He &amp;nbsp;is not intimidated by this freerecely indepdentant &amp;nbsp;woman that I am. I mean I get that I am&amp;nbsp;overwhelming. And I get that I am a lot to take in at once. I mean people complain that I am too much. My feelings aren't hurt... I know the world isn't in love with me like I am in with it. He understands my complexicies that I am both a&amp;nbsp;lioness&amp;nbsp;&amp;amp; kitten and he can handle all of this. &amp;nbsp;Or as he puts it, "Depending on the day, I'm a Bear in a Bunny suit, and somedays I'm a Bunny in a Bear suit" I am &amp;nbsp;thankful for my children. They are the beating of my heart. There are no words for the amont of&amp;nbsp;devotion&amp;nbsp;and love that I have for my children. &amp;nbsp; I hope that one day I will be ever so lucky to see them have children and they too will understand&amp;nbsp;depth&amp;nbsp;of my love for them.&lt;/p&gt; &lt;p&gt;I am Thankful to have been raised poor &amp;amp; in Guinea. I grew up wild and free. &amp;nbsp;There is something about the Guineamen that is no other place I've lived. &amp;nbsp;It's not just because they are watermen or their dialect. But they are a people who have their own ideas of what is right or wrong and to hell with society if society doesn't like it.&amp;nbsp;Rebellious&amp;nbsp;isn't even a good word to describe them. If you knew the Guineamen, you'd understand what I was talking about. I'm so proud to have grown up on the marshes of Browns Bay. &amp;nbsp;Why on earth would I be thankful to be poor? Because I know what real cold feels like. &amp;nbsp;I know what having no A/C feels like. And I know I can survive without modern civilization provided I get my pacemakers. And I know exactly what hard work is.&lt;/p&gt; &lt;p&gt;I am thank for my friends. You know who you are. &amp;nbsp;Family doesn't need to blood for me to love you less. The friends I've made in my life, I've learned so much from. &amp;nbsp;To the friends who've saved me from myself, my temper, my stupidity, and to the ones whom I've lost touch with over the years. Thank you for all the wonderful support you have give myself and my children, it trully means the world to me. If I leave this world&amp;nbsp;tomorrow, my one goal would be not just to let people know, but to make them understand that I loved them and I especially loved their flaws.&lt;/p&gt; &lt;p&gt;&amp;nbsp;&lt;/p&gt;</description><comments>http://polyhobbymommy.autisable.com/769887481/giving-thanks/#firstcomment</comments></item><item><title>Our first few days of un-schooling-homeschooling</title><link>http://polyhobbymommy.autisable.com/767607013/our-first-few-days-of-un-schooling-homeschooling/</link><guid>http://polyhobbymommy.autisable.com/767607013/our-first-few-days-of-un-schooling-homeschooling/</guid><pubDate>Wed, 29 Aug 2012 22:50:47 GMT</pubDate><description>&lt;p&gt;&lt;a href="http://phb.iamian.me/files/2012/08/indus.jpeg" rel="nofollow"&gt;&lt;img style="display: block; margin-left: auto; margin-right: auto;" title="indus" src="http://phb.iamian.me/files/2012/08/indus.jpeg" alt="" width="227" height="222" /&gt;&lt;/a&gt;&lt;/p&gt; &lt;p&gt;Isn't it funny how we buy into labels? Even amongst homeschoolers who are&amp;nbsp;traditionally&amp;nbsp;non-traditional&amp;nbsp;or who are&amp;nbsp;traditionally&amp;nbsp;very&amp;nbsp;traditional. &amp;nbsp;Many many conversations&amp;nbsp;amongst&amp;nbsp;the moms are of what type of homeschooler you are and what you use, etc etc. &amp;nbsp;Honestly, I don't get it. &amp;nbsp;I wouldn't say we un-schoolers because&amp;nbsp;amongst&amp;nbsp;traditionalist&amp;nbsp;it implies we don't school at all. But amongst un-schoolers we do a lot. So I have no idea where our&amp;nbsp;loyalties&amp;nbsp;lye. But it really doesn't matter does it? For us, the boys are hands on learners.&lt;/p&gt; &lt;p&gt;My theory is this. Learning is a free experience, so should education. So if I can make educating my kids a free as possible; then I have met my personal goal. &amp;nbsp;Because learning is an experience, hence I am kinda anti-work books. I &amp;nbsp;am of the mind that learning is holistic&amp;nbsp;endeavor. &amp;nbsp;Kinda&amp;nbsp;hippy-dippy-ish of me, I &amp;nbsp;know. &amp;nbsp;I see it, as the whole body learning and adapting, not just the brain. It's not just about much how you can remember. Its how you can take in new information, processes it , change it, &amp;nbsp;problem solve, and &amp;nbsp;think out side of the box that&amp;nbsp;determines&amp;nbsp;intelligences. &amp;nbsp;My goal is to teach emotional&amp;nbsp;intelligence, self awareness and how to cleverly problem solve. &amp;nbsp; I can't see how this is only done sitting at a desk and with just books &amp;amp; scores of testing. Granted books have their places, but I think tests are&amp;nbsp;arbitrary&amp;nbsp;at best. &amp;nbsp;I just don't believe it to be, the &amp;nbsp;be all end all to education. It just doesn't compute to me. &amp;nbsp;My kids have become absolute&amp;nbsp;sponges. Teaching them has become&amp;nbsp;effortless. And frankly, that's exactly what I want. I want them to learn to be self taught, where every day is an&amp;nbsp;opportunity&amp;nbsp;to learn.&lt;/p&gt; &lt;p&gt;The first few days are always the toughest shift from: summer-fun-in-the -sun, to lets-get-our-school-work-done-so-we-can-fun.This year will be our 3rd year of homeschooling and so far so good. Granted we're not up to 4hrs for schooling a day, but at least we are doing work with little to no fussing and they are pretty excited about it. Honestly I think they've missed all their projects,&amp;nbsp;museums, &amp;amp; friends&lt;/p&gt; &lt;p&gt;I was pretty amused by Zeke today. I've never really given the boys a history lesson,&amp;nbsp;aside&amp;nbsp;from going to museums. Well today we were learning about the Indus Valley, their way of life, and some of their symbols. &amp;nbsp;Zeke &amp;nbsp;says, "Hey mom, why did they have a swastikas?" &amp;nbsp;Oh my what a wonderful question that was. &amp;nbsp;&amp;nbsp;We were talking about Hitler and his&amp;nbsp;beliefs&amp;nbsp;of the &lt;span&gt;Aryan race, to Plato, Atlantis,&lt;/span&gt;&amp;nbsp;back to Indus Valley, &amp;nbsp; the Concentration Camps, Buddha, Gandhi, the corruption of man, and the ideals of perfections. &amp;nbsp;This is the&amp;nbsp;beauty&amp;nbsp;of homeschooling! &amp;nbsp;We are able to have these&amp;nbsp;discussions, and that they themselves can make these connections without me.&lt;/p&gt; &lt;p&gt;We became time travels at our dining room tables. Me thinks this will be a great reason to watch Dr. Who, build our own TARDIS, and make some kinda of huge project for each different&amp;nbsp;civilization in time&amp;nbsp; we visit....... oh my gears are turnings! &amp;nbsp;But for today, we made clay beads. &amp;nbsp;They have to dry first. But when we paint them and string them together I'll post&amp;nbsp;pictures&lt;/p&gt; &lt;p&gt;&amp;nbsp;&lt;/p&gt;</description><comments>http://polyhobbymommy.autisable.com/767607013/our-first-few-days-of-un-schooling-homeschooling/#firstcomment</comments></item><item><title>Muddling through Virginia Medicaid &amp; Waivers</title><link>http://polyhobbymommy.autisable.com/767573095/muddling-through-virginia-medicaid--waivers/</link><guid>http://polyhobbymommy.autisable.com/767573095/muddling-through-virginia-medicaid--waivers/</guid><pubDate>Mon, 27 Aug 2012 23:09:02 GMT</pubDate><description>&lt;p&gt;I am putting this here, because this is a serious lack of information out there about medicaid and our children. Many of us believe that there is:&lt;/p&gt; &lt;p&gt;A.) No services out there for us &amp;amp; children&lt;/p&gt; &lt;p&gt;B.) Or that we make too much money to even think to ask for help&lt;/p&gt; &lt;p&gt;C.) We kinda know, but we don't know who to ask.&lt;/p&gt; &lt;p&gt;&amp;nbsp;&lt;/p&gt; &lt;p&gt;All overwhielming to think about I know. But once it's done. It's done. Some of it may take a few weeks others may take a few months. But putting in the effort can really help out in a major way. For us at least. At one point, we were paying $1000 in co-payments. That wasn't even meds or gas.&lt;/p&gt; &lt;p&gt;Once a month TASA&amp;nbsp;&lt;a href="http://www.meetup.com/tidewater-autism/events/calendar/" rel="nofollow"&gt;(Tidewater Autism Society of America)&lt;/a&gt;&amp;nbsp;does a monthly meeting &amp;amp; a monthly Coffee &amp;amp; Chat where out Vice President comes out and helps parents with the EDCD waiver. Please, if your local. Come speak to us. There is so much out there for our kids. &amp;nbsp;If you are outside &amp;nbsp;the tidewater&amp;nbsp;region, your local Autism Society should be able to either help your directly or put you in contact with person to get you through this.&lt;/p&gt; &lt;p&gt;&lt;em&gt;&lt;strong&gt;My not so&amp;nbsp;professional&amp;nbsp;terminology&amp;nbsp;for the things&amp;nbsp;offered&amp;nbsp;in VA for our special needs children&lt;/strong&gt;&lt;/em&gt;&lt;/p&gt; &lt;p&gt;&lt;strong&gt;EDCD/Long Term Waiver:&amp;nbsp;&lt;/strong&gt;provides medicaid, medication, attendant care, and respite time. This is based on your childrens' income NOT yours.&lt;/p&gt; &lt;p&gt;&lt;strong&gt;&lt;a href="http://dmasva.dmas.virginia.gov/Content_pgs/hipp-kids.aspx" rel="nofollow"&gt;HIPP&lt;/a&gt;:&lt;/strong&gt;&amp;nbsp;reimbursement of premiums we spend on our primary insurance, if our children has&amp;nbsp;medicaid&amp;nbsp;as a secondary insurance. .&lt;/p&gt; &lt;p&gt;&lt;strong&gt;DD &amp;amp; ID waive&lt;/strong&gt;r: is housing modifications, and offers many many needs that your child may need. The waiting list is about 7yrs.&lt;/p&gt; &lt;p&gt;&lt;strong&gt;LOGISTICARE (gotta call 866-809-4620 to get the forms)&lt;/strong&gt;-reimburse us the time we travel between appointments. I believe you have to have the your children on the EDCD waiver (I just found out about this as of two days ago... damn I wished I knew about this 9 years ago!!!)&lt;/p&gt; &lt;p&gt;&lt;strong&gt;ESPDT&lt;/strong&gt;- ABA therapy, and technology assisted equipment, ie iPads, audio therapy, wheel chairs, therapy equipment.&lt;/p&gt; &lt;p&gt;&amp;nbsp;&lt;/p&gt;</description><comments>http://polyhobbymommy.autisable.com/767573095/muddling-through-virginia-medicaid--waivers/#firstcomment</comments></item><item><title>Surfers Healing: Healing Our Family As Well</title><link>http://polyhobbymommy.autisable.com/767501144/surfers-healing-healing-our-family-as-well/</link><guid>http://polyhobbymommy.autisable.com/767501144/surfers-healing-healing-our-family-as-well/</guid><pubDate>Thu, 23 Aug 2012 01:16:38 GMT</pubDate><description>&lt;p&gt;&lt;a href="http://www.surfershealingvb.org/" rel="nofollow"&gt;Surfers Healing&lt;/a&gt;&amp;nbsp;has had profound affect on my family entire family. &amp;nbsp;We began our journey three years ago, when the boys first were diagnosed with Aspergers. Little did I know that Theresa, an&amp;nbsp;acquaintance&amp;nbsp;would leave such profound mark on my life. &amp;nbsp; Infact every member of&amp;nbsp;&lt;a href="http://tidewaterasa.org/Home.php" rel="nofollow"&gt;TASA&lt;/a&gt;&amp;nbsp;has been profound. &amp;nbsp;I am not sure where my kids would be if it wasn't for the strength, wisdom, and for &amp;nbsp;those mothers putting a lighter under my ass. &amp;nbsp;Telling them Thank you will never be enough. &amp;nbsp;It is because of them, that &amp;nbsp;I feel I owe it the families like ours to help where I can, when I can.&lt;/p&gt; &lt;p&gt;It was Theresa&amp;nbsp;who told me about&amp;nbsp;&lt;a href="http://www.surfershealingvb.org/" rel="nofollow"&gt;Surfer's Healing Mini Camp&lt;/a&gt;. I remember telling her."It sounds fun.. but I donno if that's such a good idea. &amp;nbsp;My kids don't listen, the run away, they bite, they kick, Zeke refuses to bathe and is deathly afraid of the water". &amp;nbsp;She more then just urged me. She has this way."Come on guurrlll." &amp;nbsp;You &amp;nbsp;can't argue with her, because you know she's right. So taking a leap of faith we went. &amp;nbsp;I was verging on tears the whole day. Gabe was excited and it was the first time I had ever seen him that at peace. Being on the water was Gabe's Zen. And I knew in the moment, I was doing the right thing. &amp;nbsp;Now Zeke was another story. &amp;nbsp;Zeke screamed bloody murder like someone was cutting his head off. You could hear him even out in the distance, even in the rain and above the crashing of the waves. It took everything out of me not to jump in the water to rescue him. I remember her looking at me. "He's good. He's good." I'm sure she saw my fear in my eyes.&lt;/p&gt; &lt;p&gt;Three years later. It is shocking how much my kids have grown. There stemming is mostly under control. Zeke is talking. They are helpful. Mostly polite. &amp;nbsp;They are wonderful swimmers. Zeke loves taking showers now. Bye-bye are the days of trying to bathe cats instead of children. Sports has never been their strong point, unless you consider legos a sport.&lt;/p&gt; &lt;p&gt;Sonya, Scott, &amp;amp; Christian, &amp;nbsp;local surfers who, we met through&amp;nbsp;&lt;a href="http://www.surfershealingvb.org/" rel="nofollow"&gt;Surfers Healing&lt;/a&gt;, have been on this &amp;nbsp;journey of ours the entire way. &amp;nbsp; &amp;nbsp;In July, we were attending another mini camp, &amp;nbsp;Sonya let Gabe surf for the first time by himself and it was amazing. He didn't quite stand up. But by the end of the day all he could talk about was how much he wanted lessons and wanted a surf board. &amp;nbsp;Hessitant, at first. I found out through Suzi, another mother with two boys on the spectrum who caught the surfing bug through&amp;nbsp;&lt;a href="http://www.surfershealingvb.org/" rel="nofollow"&gt;Surfers Healing&lt;/a&gt;, &amp;nbsp;that there was a pretty good surfing school. The&amp;nbsp;&lt;a href="http://www.sethbroudyschoolofsurf.com/" rel="nofollow"&gt;Seth Broudy School of Surf&lt;/a&gt;&amp;nbsp;who was really great with special needs kids. &amp;nbsp;Like&amp;nbsp;Theresa, I had no idea when meeting Suzi on FB three years ago how much of an impact she would make on my life. &amp;nbsp;Taking another leap of faith, we signed Gabe up. But first I thought swimming lessons were in order.&lt;/p&gt; &lt;p&gt;If the boys are going to get serious about this, they need to swim well. Well honestly, &amp;nbsp;learning to swim when you live on the water is not a want, it is a must. &amp;nbsp;I never thought they would listen or corporate or were mature enough to listen to an instructor. This was the year for it. The boys soared through those lessons. &amp;nbsp;I had no idea where they were at, I put them both in Level 1. By the time Gabe was done they had pushed him to Level 4. Gabe had to dive of a diving board into 12ft water &amp;amp; swim the length of the pool to pass. I was shocked. I had no idea he could swim at all.. not a lone so well or so fast. Zeke was pushed to Level 3. Again, this was the kid just a month ago who would barely take a bath, not a lone swim. &amp;nbsp; Zeke almost made it to Level 4, but he had to work on his back stroke.&lt;/p&gt; &lt;p&gt;After two weeks of swimming we did a week of surfing. Zeke decided he didn't want to surf just yet. Which was cool. I mean he is only 7 after all. Gabe is almost 9, and has been involved with Surfer's Healing for 3yrs and &amp;nbsp;just now taken a real intrest in surfing. So maybe next year he will be ready. To our&amp;nbsp;surprise, guess who was their instructors? &amp;nbsp;Sonya! Gabe was beyond excited. &amp;nbsp;By the end of week Gabe was not only surfing on his own, but standing &amp;amp; catching most the waves himself.&lt;/p&gt; &lt;p&gt;Usually anything physical they avoid like the plague. So to see him surf with such easy, with such joy, and with such confidence. &amp;nbsp;It was like witnessing a miracle. &amp;nbsp;Ok... I know that is pretty dramatic word. &amp;nbsp;But it really was very dramatic for our entire family. I had no idea he was so capable. &amp;nbsp;All those&amp;nbsp;traditional&amp;nbsp;sports he has never been able to do for some reason or another but here he is able to surf. It's pretty &amp;nbsp;freaking amazing. &amp;nbsp;It reminded me that while they are far more capable then I or the world gives them credit for. I wont make that mistake again.&lt;/p&gt; &lt;p&gt;At the end of the day. They give the kids these metals. Gabe told because it was his first metal ever, it deserved a shadow box. And now that he knows how to surf he wants to teach other kids with Autism &amp;amp; Aspergers how to surf. &amp;nbsp;My sweet sweet child. I hope he never looses that. I wonder if Scott will let him help out some how next year?&lt;/p&gt; &lt;p&gt;My gallery app is acting up. If the pics aren't up today.. they maybe in a day or so. Here are some pics that my wonderful friend Suzi took, as well as some photographers at Surfer's Healing. There are more pics on FB, but I haven't found them all. There was a lot of people taking a lot of pictures.&lt;/p&gt; &lt;div&gt;&lt;dl&gt;&lt;dt&gt;&lt;a title="gabesurfing_1" href="http://polyhobbymommy.com/files/2012/08/gabesurfing_1.jpg" rel="nofollow"&gt;&lt;img title="gabesurfing_1" src="http://polyhobbymommy.com/files/2012/08/gabesurfing_1-150x150.jpg" alt="gabesurfing_1" width="150" height="150" /&gt;&lt;/a&gt;&lt;/dt&gt;&lt;/dl&gt;&lt;img title="gabesurfing_2" src="http://polyhobbymommy.com/files/2012/08/gabesurfing_2-150x150.jpg" alt="gabesurfing_2" width="150" height="150" /&gt;&lt;dl&gt;&lt;dt&gt;&lt;/dt&gt;&lt;/dl&gt;&lt;dl&gt;&lt;dt&gt;&lt;a title="gabesurfing_3" href="http://polyhobbymommy.com/files/2012/08/gabesurfing_3.jpg" rel="nofollow"&gt;&lt;img title="gabesurfing_3" src="http://polyhobbymommy.com/files/2012/08/gabesurfing_3-150x150.jpg" alt="gabesurfing_3" width="150" height="150" /&gt;&lt;/a&gt;&lt;/dt&gt;&lt;/dl&gt;&lt;dl&gt;&lt;dt&gt;&lt;a title="gabesurfing_4" href="http://polyhobbymommy.com/files/2012/08/gabesurfing_4.jpg" rel="nofollow"&gt;&lt;img title="gabesurfing_4" src="http://polyhobbymommy.com/files/2012/08/gabesurfing_4-150x150.jpg" alt="gabesurfing_4" width="150" height="150" /&gt;&lt;/a&gt;&lt;/dt&gt;&lt;/dl&gt;&lt;br /&gt;&lt;dl&gt;&lt;dt&gt;&lt;a title="gabesurfing_5" href="http://polyhobbymommy.com/files/2012/08/gabesurfing_5.jpg" rel="nofollow"&gt;&lt;img title="gabesurfing_5" src="http://polyhobbymommy.com/files/2012/08/gabesurfing_5-150x150.jpg" alt="gabesurfing_5" width="150" height="150" /&gt;&lt;/a&gt;&lt;/dt&gt;&lt;/dl&gt;&lt;dl&gt;&lt;dt&gt;&lt;a title="gabesurfing_6" href="http://polyhobbymommy.com/files/2012/08/gabesurfing_6.jpg" rel="nofollow"&gt;&lt;img title="gabesurfing_6" src="http://polyhobbymommy.com/files/2012/08/gabesurfing_6-150x150.jpg" alt="gabesurfing_6" width="150" height="150" /&gt;&lt;/a&gt;&lt;/dt&gt;&lt;/dl&gt;&lt;dl&gt;&lt;dt&gt;&lt;a title="gabesurfing_7" href="http://polyhobbymommy.com/files/2012/08/gabesurfing_7.jpg" rel="nofollow"&gt;&lt;img title="gabesurfing_7" src="http://polyhobbymommy.com/files/2012/08/gabesurfing_7-150x150.jpg" alt="gabesurfing_7" width="150" height="150" /&gt;&lt;/a&gt;&lt;/dt&gt;&lt;/dl&gt;&lt;dl&gt;&lt;dt&gt;&lt;a title="gabesurfing_8" href="http://polyhobbymommy.com/files/2012/08/gabesurfing_8.jpg" rel="nofollow"&gt;&lt;img title="gabesurfing_8" src="http://polyhobbymommy.com/files/2012/08/gabesurfing_8-150x150.jpg" alt="gabesurfing_8" width="150" height="150" /&gt;&lt;/a&gt;&lt;/dt&gt;&lt;/dl&gt;&lt;br /&gt;&lt;dl&gt;&lt;dt&gt;&lt;a title="gabesurfing_9" href="http://polyhobbymommy.com/files/2012/08/gabesurfing_9.jpg" rel="nofollow"&gt;&lt;img title="gabesurfing_9" src="http://polyhobbymommy.com/files/2012/08/gabesurfing_9-150x150.jpg" alt="gabesurfing_9" width="150" height="150" /&gt;&lt;/a&gt;&lt;/dt&gt;&lt;/dl&gt;&lt;dl&gt;&lt;dt&gt;&lt;a title="gabesurfing_10" href="http://polyhobbymommy.com/files/2012/08/gabesurfing_10.jpg" rel="nofollow"&gt;&lt;img title="gabesurfing_10" src="http://polyhobbymommy.com/files/2012/08/gabesurfing_10-150x150.jpg" alt="gabesurfing_10" width="150" height="150" /&gt;&lt;/a&gt;&lt;/dt&gt;&lt;/dl&gt;&lt;dl&gt;&lt;dt&gt;&lt;a title="gabesurfing_11" href="http://polyhobbymommy.com/files/2012/08/gabesurfing_11.jpg" rel="nofollow"&gt;&lt;img title="gabesurfing_11" src="http://polyhobbymommy.com/files/2012/08/gabesurfing_11-150x150.jpg" alt="gabesurfing_11" width="150" height="150" /&gt;&lt;/a&gt;&lt;/dt&gt;&lt;/dl&gt;&lt;dl&gt;&lt;dt&gt;&lt;a title="gabesurfing_12" href="http://polyhobbymommy.com/files/2012/08/gabesurfing_12.jpg" rel="nofollow"&gt;&lt;img title="gabesurfing_12" src="http://polyhobbymommy.com/files/2012/08/gabesurfing_12-150x150.jpg" alt="gabesurfing_12" width="150" height="150" /&gt;&lt;/a&gt;&lt;/dt&gt;&lt;/dl&gt;&lt;br /&gt;&lt;dl&gt;&lt;dt&gt;&lt;a title="gabesurfing_13" href="http://polyhobbymommy.com/files/2012/08/gabesurfing_13.jpg" rel="nofollow"&gt;&lt;img title="gabesurfing_13" src="http://polyhobbymommy.com/files/2012/08/gabesurfing_13-150x150.jpg" alt="gabesurfing_13" width="150" height="150" /&gt;&lt;/a&gt;&lt;/dt&gt;&lt;/dl&gt;&lt;dl&gt;&lt;dt&gt;&lt;a title="gabesurfing_14" href="http://polyhobbymommy.com/files/2012/08/gabesurfing_14.jpg" rel="nofollow"&gt;&lt;img title="gabesurfing_14" src="http://polyhobbymommy.com/files/2012/08/gabesurfing_14-150x150.jpg" alt="gabesurfing_14" width="150" height="150" /&gt;&lt;/a&gt;&lt;/dt&gt;&lt;/dl&gt;&lt;dl&gt;&lt;dt&gt;&lt;a title="gabesurfing_15" href="http://polyhobbymommy.com/files/2012/08/gabesurfing_15.jpg" rel="nofollow"&gt;&lt;img title="gabesurfing_15" src="http://polyhobbymommy.com/files/2012/08/gabesurfing_15-150x150.jpg" alt="gabesurfing_15" width="150" height="150" /&gt;&lt;/a&gt;&lt;/dt&gt;&lt;/dl&gt;&lt;dl&gt;&lt;dt&gt;&lt;a title="gabesurfing_16" href="http://polyhobbymommy.com/files/2012/08/gabesurfing_16.jpg" rel="nofollow"&gt;&lt;img title="gabesurfing_16" src="http://polyhobbymommy.com/files/2012/08/gabesurfing_16-150x150.jpg" alt="gabesurfing_16" width="150" height="150" /&gt;&lt;/a&gt;&lt;/dt&gt;&lt;/dl&gt;&lt;br /&gt;&lt;dl&gt;&lt;dt&gt;&lt;a title="gabesurfing_17" href="http://polyhobbymommy.com/files/2012/08/gabesurfing_17.jpg" rel="nofollow"&gt;&lt;img title="gabesurfing_17" src="http://polyhobbymommy.com/files/2012/08/gabesurfing_17-150x150.jpg" alt="gabesurfing_17" width="150" height="150" /&gt;&lt;/a&gt;&lt;/dt&gt;&lt;/dl&gt;&lt;dl&gt;&lt;dt&gt;&lt;a title="gabesurfing_19" href="http://polyhobbymommy.com/files/2012/08/gabesurfing_19.jpg" rel="nofollow"&gt;&lt;img title="gabesurfing_19" src="http://polyhobbymommy.com/files/2012/08/gabesurfing_19-150x150.jpg" alt="gabesurfing_19" width="150" height="150" /&gt;&lt;/a&gt;&lt;/dt&gt;&lt;/dl&gt;&lt;dl&gt;&lt;dt&gt;&lt;a title="gabesurfing_20" href="http://polyhobbymommy.com/files/2012/08/gabesurfing_20.jpg" rel="nofollow"&gt;&lt;img title="gabesurfing_20" src="http://polyhobbymommy.com/files/2012/08/gabesurfing_20-150x150.jpg" alt="gabesurfing_20" width="150" height="150" /&gt;&lt;/a&gt;&lt;/dt&gt;&lt;/dl&gt;&lt;dl&gt;&lt;dt&gt;&lt;a title="gabesurfing_21" href="http://polyhobbymommy.com/files/2012/08/gabesurfing_21.jpg" rel="nofollow"&gt;&lt;img title="gabesurfing_21" src="http://polyhobbymommy.com/files/2012/08/gabesurfing_21-150x150.jpg" alt="gabesurfing_21" width="150" height="150" /&gt;&lt;/a&gt;&lt;/dt&gt;&lt;/dl&gt;&lt;br /&gt;&lt;dl&gt;&lt;dt&gt;&lt;a title="gabesurfing_23" href="http://polyhobbymommy.com/files/2012/08/gabesurfing_23.jpg" rel="nofollow"&gt;&lt;img title="gabesurfing_23" src="http://polyhobbymommy.com/files/2012/08/gabesurfing_23-150x150.jpg" alt="gabesurfing_23" width="150" height="150" /&gt;&lt;/a&gt;&lt;/dt&gt;&lt;/dl&gt;&lt;dl&gt;&lt;dt&gt;&lt;a title="gabesurfing_24" href="http://polyhobbymommy.com/files/2012/08/gabesurfing_24.jpg" rel="nofollow"&gt;&lt;img title="gabesurfing_24" src="http://polyhobbymommy.com/files/2012/08/gabesurfing_24-150x150.jpg" alt="gabesurfing_24" width="150" height="150" /&gt;&lt;/a&gt;&lt;/dt&gt;&lt;/dl&gt;&lt;dl&gt;&lt;dt&gt;&lt;a title="gabesurfing_22" href="http://polyhobbymommy.com/files/2012/08/gabesurfing_22.jpg" rel="nofollow"&gt;&lt;img title="gabesurfing_22" src="http://polyhobbymommy.com/files/2012/08/gabesurfing_22-150x150.jpg" alt="gabesurfing_22" width="150" height="150" /&gt;&lt;/a&gt;&lt;/dt&gt;&lt;/dl&gt;&lt;dl&gt;&lt;dt&gt;&lt;a title="gabesurfing_25" href="http://polyhobbymommy.com/files/2012/08/gabesurfing_25.jpg" rel="nofollow"&gt;&lt;img title="gabesurfing_25" src="http://polyhobbymommy.com/files/2012/08/gabesurfing_25-150x150.jpg" alt="gabesurfing_25" width="150" height="150" /&gt;&lt;/a&gt;&lt;/dt&gt;&lt;/dl&gt;&lt;br /&gt;&lt;dl&gt;&lt;dt&gt;&lt;a title="gabesurfing_26" href="http://polyhobbymommy.com/files/2012/08/gabesurfing_26.jpg" rel="nofollow"&gt;&lt;img title="gabesurfing_26" src="http://polyhobbymommy.com/files/2012/08/gabesurfing_26-150x150.jpg" alt="gabesurfing_26" width="150" height="150" /&gt;&lt;/a&gt;&lt;/dt&gt;&lt;/dl&gt;&lt;dl&gt;&lt;dt&gt;&lt;a title="gabesurfing_28" href="http://polyhobbymommy.com/files/2012/08/gabesurfing_28.jpg" rel="nofollow"&gt;&lt;img title="gabesurfing_28" src="http://polyhobbymommy.com/files/2012/08/gabesurfing_28-150x150.jpg" alt="gabesurfing_28" width="150" height="150" /&gt;&lt;/a&gt;&lt;/dt&gt;&lt;/dl&gt;&amp;nbsp;&lt;/div&gt;</description><comments>http://polyhobbymommy.autisable.com/767501144/surfers-healing-healing-our-family-as-well/#firstcomment</comments></item><item><title>Happy 7th Birthday Ezekiel!</title><link>http://polyhobbymommy.autisable.com/767501106/happy-7th-birthday-ezekiel/</link><guid>http://polyhobbymommy.autisable.com/767501106/happy-7th-birthday-ezekiel/</guid><pubDate>Thu, 23 Aug 2012 01:13:28 GMT</pubDate><description>&lt;p&gt;Every birthday I make a pinata. This year, Zeke wanted an Angry Birds Party. So a green pig&amp;nbsp;seemed&amp;nbsp;suitable to&amp;nbsp;whack&amp;nbsp;&amp;amp; attach. &amp;nbsp;It was pretty wonderful my best friend, Kelena &amp;amp; her family &amp;nbsp;came down from&amp;nbsp;Northern Va to be with us for the weekend. No one got hit with a pinata stick, no one got hurt, family &amp;amp; friends, we had mexican food, and lots laughs. I say it was a pretty damn good party. &amp;nbsp;Well Zeke did have a rough day. He was kinda whiny. But was a lot. He tends to get over stimulated easily. But still no stiches &amp;amp; no concusions. Life is good.&lt;/p&gt; &lt;p&gt;It's amazing being a parent. Somedays I just want to hide in a closet because they are devil spawn. Somedays I want nothing else in the world but to hold them. Somedays it feels like the days stretch&amp;nbsp;on forever.&amp;nbsp;Then there are birthdays. And it hits you like a kick in the face. My god how time flies by. I can't help but think, "Didn't I just give birth to this monkey? Wasn't I just breast feeding him? He wasn't talking not too long ago?" I feel so&amp;nbsp;fortunate&amp;nbsp;that I am the one raising such&amp;nbsp;beautiful&amp;nbsp;little boy.&lt;/p&gt; &lt;p style="text-align: center;"&gt;HAPPY BIRTHDAY EZEKIEL BONIFACE!!!!!!!!&lt;/p&gt; &lt;p&gt;&lt;a href="http://phb.iamian.me/files/2012/08/PIG.jpeg" rel="nofollow"&gt;&lt;img style="display: block; margin-left: auto; margin-right: auto;" title="PIG" src="http://phb.iamian.me/files/2012/08/PIG-225x300.jpg" alt="" width="225" height="300" /&gt;&lt;/a&gt;&lt;/p&gt; &lt;p&gt;&lt;em&gt;Please vote for&amp;nbsp;&lt;a href="http://picketfenceblogs.com/vote/2773" rel="nofollow"&gt;PolyHobbyMommy.com&lt;/a&gt;.&amp;nbsp; Just click the link.&amp;nbsp; Fallow&amp;nbsp; me on&amp;nbsp; Twitter&amp;nbsp;&lt;a href="http://www.facebook.com/pages/Poly-Hobby-Mommy/147192978683173"&gt;Facebook&lt;/a&gt;&lt;/em&gt;&amp;nbsp;Thanks!&lt;/p&gt;</description><comments>http://polyhobbymommy.autisable.com/767501106/happy-7th-birthday-ezekiel/#firstcomment</comments></item><item><title>Remember when I said things were bound to get worse? Well they did.</title><link>http://polyhobbymommy.autisable.com/767501072/remember-when-i-said-things-were-bound-to-get-worse-well-they-did/</link><guid>http://polyhobbymommy.autisable.com/767501072/remember-when-i-said-things-were-bound-to-get-worse-well-they-did/</guid><pubDate>Thu, 23 Aug 2012 01:10:24 GMT</pubDate><description>&lt;p&gt;Well it did get bad there for a few weeks. But it's been wonderful too. I'll post about the wonders later. Let the bitching commence! &amp;nbsp;:)&lt;/p&gt; &lt;p&gt;That week after I lost my phone, &amp;amp; the van broke down on the side of the road, &amp;nbsp;I &amp;nbsp;also got beat up and knocked down by a wave and it stole my glasses at Surfer's Healing Mini Camp. &amp;nbsp;The mini camp was great. Gabe surfed for the first time by himself.&lt;/p&gt; &lt;p&gt;Zeke, of course he is my wonderer, decided to go pretty far out and it had made me nervous. So like a good mom I went out the ocean and made him come back to shore. My cool Ed Hardey glasses were history after that. We were down to one vechile, which I had, so I had to wait for a friend to get Ian to bring me my sun glasses &amp;amp; get all my favorite mommas at&amp;nbsp;&lt;a href="http://tidewaterasa.org/Home.php" rel="nofollow"&gt;TASA&lt;/a&gt;&amp;nbsp;to help me keep an eye on my kids.&lt;/p&gt; &lt;p&gt;The trip to MN went really well, but I started not to feel too hot. Honestly, I didn't want to post about it until I knew what was going on. My right leg started to swell and they thought I had another clot. After a few days of me feeling worse, I went to the ER on the advise of my hemotologist. While they found no clot, they did find my BNP was up. &amp;nbsp;(BNP is a test for congestive heart failure) I got back, and my doctors upped my lasics. In that weekend that I got home &amp;amp; the Monday I saw my doctors, I had gained 15lbs! I mean who gaines 15lbs in like a day? I have no idea how much I gained during my trip. I was feeling pretty sick and my chest was killing me. I lost those 15bs in like 3 days and I was getting out of bed and feeling better, by the next weekend. I forgot it for one day, and I gained 8lbs. &amp;nbsp;After many many test and basicilly quadrouablly my lasics. The clots I had int he spring have triggered me to symptomatic of CHF. I have always have CHF, but it has never been a problem until now.&lt;/p&gt; &lt;p&gt;Needless to say. I haven't been feeling all that hot. And it sucks because all my weight I lost last summer, came back&amp;nbsp;literally&amp;nbsp;over night. I know it's not all my fault. I gotta admit, I have been bitter, and angry about this whole ordeal. My garden has gone to hell and so has many of my other projects. &amp;nbsp;I can't stand being so exhausted all the time. &amp;nbsp;I have been doing some things when I can. I do&amp;nbsp;apologize&amp;nbsp;for not keeping up. I tend withdraw when life gets too hard. &amp;nbsp;I think I am over the with drawing.&lt;/p&gt; &lt;p&gt;&lt;em&gt;Please vote for&amp;nbsp;&lt;a href="http://picketfenceblogs.com/vote/2773" rel="nofollow"&gt;PolyHobbyMommy.com&lt;/a&gt;.&amp;nbsp; Just click the link.&amp;nbsp; Fallow&amp;nbsp; me on&amp;nbsp; Twitter&amp;nbsp;&lt;a href="http://www.facebook.com/pages/Poly-Hobby-Mommy/147192978683173"&gt;Facebook&lt;/a&gt;&lt;/em&gt;&amp;nbsp;Thanks!&lt;a href="http://www.xanga.com/#this_is_the_xanga_cms_identifier_used_to_auto_link_to_item_page_when_published"&gt;&lt;img src="http://xe7.xanga.com/6961647501033282403667/m207716732.jpg" alt="" /&gt;&lt;/a&gt;&lt;/p&gt; &lt;p&gt;&amp;nbsp;&lt;/p&gt;</description><comments>http://polyhobbymommy.autisable.com/767501072/remember-when-i-said-things-were-bound-to-get-worse-well-they-did/#firstcomment</comments></item><item><title>Anything that can go wrong, will go wrong</title><link>http://polyhobbymommy.autisable.com/766052950/anything-that-can-go-wrong-will-go-wrong/</link><guid>http://polyhobbymommy.autisable.com/766052950/anything-that-can-go-wrong-will-go-wrong/</guid><pubDate>Sun, 22 Jul 2012 12:14:13 GMT</pubDate><description>&lt;p&gt;Morphy's Law is inevitable. The other day, I was in rush to get the kids to their appointments. I had several things in my hand, I placed some of those things on top of the van, because I remembered I forgot something in house, back to the van, back to the house. Admittedly it takes 4 to 5 trips to the van and to the house again before I actually leave and without fail, and I still forget something somewhat important once a get there. It's no easy task leaving the house with my boys.&amp;nbsp; Weather it's a trip to the beach, the doctors, or California, it takes about 2 hours to actually get out of the house and on the road.&lt;/p&gt; &lt;p&gt;Needless to say, I made it to the appoint, only to realize I didn't have my phone.&amp;nbsp; While Gabe is in visual therapy I searched my purse, the van, the office... no phone. No big deal I thought, I probably left it behind. Just as I was speeding up on I- 64, I was thinking, it would suck if I left it on top of the van, just then I hear clunk-clunk. I see my phone fly behind me.&amp;nbsp; UHHHHHH !!!! I could kick myself!&amp;nbsp; I get home, tell Ian to check out T-mobile, and see&amp;nbsp; about the warranty and if I was eligible for an upgrade.&amp;nbsp; Guess who doesn't qualify for a new phone or a no warranty? This girl!&lt;/p&gt; &lt;p&gt;So I got over my fit. I figured I'd just buy a cheap phone come Friday.&amp;nbsp; No biggie. There was a time where I we had no cell phone, right? Well yesterday made me feel different.&lt;/p&gt; &lt;p&gt;We were on our way to Robotics at the Air &amp;amp; Space museum, in Hampton. We weren't on I64 for maybe 5mins when my A/C starts to blow hot air &amp;amp; check engine light starts binging away. I pull over, and check my fluids. The water looked low, so I used the last of my water hoping it was enough. I turn the van back on, hoping the check engine light would be off. Not my luck.&amp;nbsp; It was 104 yesterday, and it felt every bit of that and more on the side of road. I make the boys get out of van to sit on the side of the road where it was cooler then the van and&amp;nbsp; I made a sign.&amp;nbsp; I figured we'd get help pretty soon. And we did after about 40mins.&amp;nbsp; I honestly figured we'd get help sooner. I mean who doesn't help a mom &amp;amp; kids on the side of the road? I know I would. Just when I started to get nervous about being on the interstate with no way to call for help. A woman from out of town stopped to help. She let me use her phone to call for help and stayed until another man came to help out.&amp;nbsp;&amp;nbsp; Who was mechanic and he looked at van, and said, that it was smart of me to stop, radiator was bone dry.&amp;nbsp; Finally V-Dot &amp;amp; a police officer showed up.&amp;nbsp; So my faith in humanity was restored and we are safe once more. Though,I have a sneaking suspicion that something else will go horribly wrong again&amp;nbsp; while I am without my phone.&lt;/p&gt; &lt;p&gt;&amp;nbsp;&lt;/p&gt; &lt;p&gt;&lt;em&gt;Please vote for &lt;a href="http://picketfenceblogs.com/vote/2773" rel="nofollow"&gt;PolyHobbyMommy.com&lt;/a&gt;.&amp;nbsp; Just click the link.&amp;nbsp; Fallow&amp;nbsp; me on&amp;nbsp; Twitter &lt;a href="http://www.facebook.com/pages/Poly-Hobby-Mommy/147192978683173"&gt;Facebook&lt;/a&gt;&lt;/em&gt; Thanks!&lt;a href="http://www.xanga.com/#this_is_the_xanga_cms_identifier_used_to_auto_link_to_item_page_when_published"&gt;&lt;img src="http://xe7.xanga.com/6961647501033282403667/m207716732.jpg" alt="" /&gt;&lt;/a&gt;&lt;/p&gt;</description><comments>http://polyhobbymommy.autisable.com/766052950/anything-that-can-go-wrong-will-go-wrong/#firstcomment</comments></item><item><title>Where's Joel Now?</title><link>http://polyhobbymommy.autisable.com/766043463/wheres-joel-now/</link><guid>http://polyhobbymommy.autisable.com/766043463/wheres-joel-now/</guid><pubDate>Sun, 22 Jul 2012 01:53:31 GMT</pubDate><description>&lt;p&gt;&lt;img style="display: block; margin-left: auto; margin-right: auto;" src="https://encrypted-tbn3.google.com/images?q=tbn:ANd9GcQtIPmI1ot25nhg8NWjkMgl10LohVwmBt3iYvvKysGsNR8RFjKQ" alt="" /&gt;&lt;/p&gt; &lt;p&gt;Will Joel be just going to Disneyland or will he be attending the conference? You tell us.&amp;nbsp; We need you to find him at the conference since we're not going. Luckily, Joel will be there, updating us from the conference&amp;nbsp;&lt;a href="http://edlives.xanga.com/"&gt;Autisable&lt;/a&gt; , &lt;a href="http://www.facebook.com/joel.manzer"&gt;facebook&lt;/a&gt;,&amp;nbsp; or &lt;a href="https://twitter.com/edlives"&gt;twitter.&lt;a href="http://polyhobbymommy.autisable.com/766043463/wheres-joel-now/?cuttag=true#cuttaganchor"&gt;More Here...&lt;/a&gt;&lt;/a&gt;&lt;/p&gt;</description><comments>http://polyhobbymommy.autisable.com/766043463/wheres-joel-now/#firstcomment</comments></item></channel></rss>